Key Lime Pie and Other Treats

Big Gulf, Little kids

Jerry left rehab last Friday and we haven’t had a minute to catch our breath ever since.  Ryan, Anne and Grace arrived Saturday afternoon.  Erin, Brent, Lana, Calli and Declan arrived Sunday night. (You should have seen our house at night with people sleeping everywhere)  Ryan and Anne left on Tuesday morning and Grace stayed an extra day hang out with her cousins and to go to Mote Marine Aquarium.  Now we only have Erin and her gang and they’re leaving tomorrow for Harry Potter World at Universal in Orlando.  I imagine we’ll head to the beach this afternoon.  Those kids are crazy.

It’s been cold, really cold but the kids have been at the beach every day.  I don’t know how they do it.   And they’ve been doing swim team practice at the outdoor pool at our local YMCA in the evening. Brrr.

In the meantime, Jerry and I had tons to do.  He had an X-ray and met with Dr. Fong, his surgeon, in Sarasota on Monday for his post surgical visit. He’s healing beautifully.   X-ray showed clear lungs (yay, no more pneumonia), all systems go.  He can start driving (with supervision), needs to talk to his cardiologist about the cardiac program at the Y, no pool because of the feeding tube but everything else looks good.

Then on Wednesday we met with the out patient speech pathologist.  Jerry had begun trying foods at the hospital and we just assumed he’d keep on going at rehab.Unfortunately, the speech therapist at rehab didn’t want to try foods with Jerry…first because she didn’t have the records from Sarasota Memorial and then because he had pneumonia (or maybe she was just chicken).   Unfortunately, gradual return to eating was the whole purpose of rehab (for us anyway) and we were massively frustrated to spend two weeks there just doing swallowing exercises.  So when we headed to outpatient speech on Wednesday, I brought a container of yogurt and his morning meds already crushed and ready to go.

If she won’t try foods, I told Jerry, we leaving and we’ll find another therapist.

We walked in and the therapist immediately started asking about food and what he was able to eat.  I put the yogurt and meds on the desk and we began there.  We LOVE this therapist.  She gave us a list of things for Jerry to try and so far, so good.  Yogurt, mashed bananas, mashed potatoes and gravy, scrambled eggs, and best of all, key lime pie (minus the crust).  He’s still getting most of his nutrition via the feeding tube but slowly but surely he’s on his way back.  Yes!

It’s been a long journey and we know we have more to go but we’re getting there.  And our record for surviving rough times so far is 100%…can’t see any reason why we won’t come out of this one.  We’ll just keep on keeping on…and count our blessings (many of whom we saw this week!)

Love to all

Cousins

In the Gulf (brr)

Sweet Calli at the beach

Sharks at Mote

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14 thoughts on “Key Lime Pie and Other Treats

  1. Love the pictures! And wonderful about Jerry’s progress! I’m happy for you all.

  2. Life is good. Yogurt. Mashed banana grandkids. Ahhh

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  3. Jacqueline Neiman

    Glad things are moving forward and yay for good SLPs!

    J

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  4. Wonderful news you are both inspirations I’m still on run because plane cancelations so home last night going to east coast tomorrow . But I am thinking about you all with love and prayers and hope to see you next week. Xoxo Paula

    Sent from my iPhone

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  5. Yay! Many, many reasons for you both to be thankful and feel blessed. (Due in large part to your perseverance and courage, Mary!)

  6. So glad to hear things are going well and getting better. You two are my inspiration to never give up! Hugs and prayers to both of you! Gayle

  7. Deirdre Christman

    So glad Jerry’s getting to start real food again! And what a boost to have the kids there- chips off the old block! No grass grows under their feet.

  8. Mary, so glad to learn that Jerry is doing soooo well! Sounds like you’ve been very busy with all your favorite little people! Wow, can’t believe they’ve been on the beach and in the water! Way too cold for us older folks huh?! So happy that your lives had finally turned a corner and it’s back to fun and “normal”!
    Hope to see you on the 21st at Turtle meeting! Hugs, Pam

  9. Happy to hear that things are still moving in the right direction.
    The kids are super cute!!

    • Janet walker-aronson

      Moving forward…in the direction of embracing life fully with love and determination. That’s the Mary I know. Many blessings being sent your way.

  10. The swimming mermaids and mermen were in the water today or are those earlier made pictures ?? Brrrrrrrrrrrrrrrrrr

    Sent from my iPad

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  11. I love the pictures of those beautiful children. I never doubted you survivors would make it through this latest challenge. You sought the best medical care for your cancer and do the same for Jerry’s care. You educate yourselves and advocate for the best treatments. And then you generate the love, support and prayers from all your family & friends to guarantee positive results. I never stop sending my dose your way.

  12. Wendie Highsmith

    What great news! What great fun!

    Wendie

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