First the good news
1. Jerry continues to get stronger.
2. He’s very sharp…knows more about his tubes and what meds go where and how to fix quirky things than I do. I was so passive after my surgery. He’s way more interested in what’s going on and why. The nurses don’t have a lot of experience with feeding tubes so he supervises.
3 Four new babies yesterday. One set of twins.
4. Sean is safely back in LA. Erin’s kids did terrific at their swim meet this weekend.
5. My back is doing fine.
6. Jerry did better swallowing yesterday. Great therapist who had some good tips for him and really gave us a lot of hope that this swallowing issue is temporary and he’ll most likely get back to real food eventually. And she’s coming back every day till he’s discharged. They still won’t let him have anything by mouth except during therapy sessions. Are determined he won’t go back to ICU on their watch
7 I saw my sister’s grandkids last night. Great to get a kid fix. They are just beautiful and I loved spending time with them (and my nephew, Jason, and his wife, Ang)
8. We probably know every nurse on the floor and they promise to take good care of me now that the kids are gone and I’m on my own.
9 We have a big beautiful room with lots of sun and light and a huge couch for me…best hospital room I’ve ever seen.
10. The play at FST…Brownsville Song…was absolutely wonderful. Thanks, Deirdre and Russ, for getting me there and back to the hospital.
And the bad news?
1 No discharge date in sight. Biggest problem is an air leak in the lungs…don’t seem to know exactly what caused it or why it hasn’t healed itself the way it’s supposed to. Lungs still don’t look good
2 Still going into a-fib off and on…more meds!
3 Walked in today and someone followed me in with a nice pitcher of ice water. I’m usually pretty easy going but mistakes like this could cost someone his life I blasted the guy. There’s a red light outside Jerry’s room indicating nothing by mouth, the whiteboard in his room says tube feeding only, and this guy doesn’t check. I told him it wasn’t serious in Jerry’s case because he’s sharp enough to know he can’t have water but someone else who was disoriented and confused could have a nice glass of water and aspirate and land in the ICU with pneumonia. He kinda shrugged and said sorry…I gave him the finger when he walked out. (No, he didn’t see me) Told Jerry’s nurse about it. She wrote NPO in huge letters on the whiteboard.
4 We’ve been playing a lot of gin rummy. Jerry continues to kill me. Wouldn’t you think I’d be able to beat a sick guy?
5 Donald Trump is still President.
My days have taken on a certain rhythm. I’m out of the house by 6:30, at the hospital shortly after 7. I get here in time for rounds, see the doctor and the night nurse and hear results of any tests they did during the night. I try to do a little yoga in the morning, walk outside every afternoon. We read, play cards, , watch TV (mostly Netflix on the iPad) I leave around 5:00, go home, have something to eat and go to bed. Exciting life, huh? When Jerry gets to rehab I’m hoping to go to yoga every morning before I go see him but for now, I need to be here early. Thinking maybe one of these days I’ll skip out early and go to sunset yoga it would do me good.
Thank you again for your prayers and good thoughts. We are so grateful to know we aren’t doing this all alone.