Whew! We’re home. Well, we’re at Anne’s. I think Jerry and Sean unpacked for an hour and a half….Mostly meds and setting up the food pump and feeding me and pumping in meds through the feeding tube. Poor guys…they’re doing great but it’s got to be so stressful for them and I just sit there and tell them to make sure they’re doing the right thing and to be careful and don’t squirt stuff all over Anne’s rug….What a pain I am. They are so good and so patient and they really do know what they’re doing….but it is funny to watch the two of them reading instructions and finding the right stuff and figuring out what to do next.
The wheelchair to bring you out is interesting….has tons of storage space for all the ‘stuff” you’ve accumulated while you were there. Like the bear? It’s to hold against my chest when I cough so I don’t hurt so much. It sort of works.
So Sean is now tutoring online and Jerry is checking his email and I am relaxing on Anne’s couch upstairs with the sun pouring in the windows…so beautiful to leave MD Anderson on a sunny day. Even the trees and grass looked greener than they did a week ago. I am one very happy camper.
Next steps….In the next few days, the report from the biopsies they did from the surgery should be posted on my website. Dr. Mehran (surgeon) expects they’ll be just fine. If they’re not fine…well, we’ll cross that bridge when we come to it. Dr. Mehran will go over them with me next Wednesday when I go in for an x-ray, blood work and a barium swallow. If the barium swallow goes fine, they’ll start me on clear liquids, then after they see how I tolerate that, it’s thicker things…smoothie, maybe, cream soups…I’m not sure. We’ll take it one day at a time.
Again, thanks for the encouragement, the prayers, the good thoughts and energy. I am still in shock that it’s really me doing all this. Usually I’m not sick.