PET scan results….all good. We met with Dr. Nguyen this morning who said she was delighted with the results of the treatment. We’re pretty happy too. The tumor is gone, mostly gone anyway. I think there may be some “stuff” still in the esophageal wall…I don’t think that would show up with an endoscopy….only an endoscopic ultrasound which they didn’t do (not sure why)
My swallowing issues are due to inflammation from the proton radiation. Biopsy and CT scan results aren’t back but I’m not expecting any nasty surprises when we meet with Dr. Ho on Friday.
It’s exactly what I hoped for…Well, no…what I hoped was they’d say OMG, it’s GONE, all gone…you’re done. Go home. But I’m a realistic woman and so my realistic hope was that the treatment did some good and surgery would take care of the rest..which is exactly what Dr Nguyen said was happening.
No more tests….not for awhile, anyway. And things are good, thank God.
I saw Stephanie, one of my favorite proton therapists, after our appointment with Dr. Nguyen. She told me that the proton team has been following this blog and they have the photo of Margi and me and the harp on their screen saver. She says whenever someone gets stressed, they’ll say, “Hey, anyone have a friend with a harp? I need a friend with a harp.” I told her about Margi learning to play the harp when she retired and she said, “Hey maybe I need to be the friend with the harp.” Okay, Stephanie, start looking for a harp.
Anne and Clark come home tomorrow. It will be wonderful to see them. It’ll be a short visit. We’re both taking off on Friday…we’re going to see the Littles and Anne and Clark for business in Dallas. We’ll be back here on Tuesday….meeting with the surgeon and anesthesiologist on Wednesday, surgery on Thursday.
I’m enjoying every minute until then (even when I’m sitting around waiting rooms at MD Anderson.) It’s as if these are my last days of health (health?) for a long, long time. I have this picture of myself not able to eat at all and in pain and fragile…I need to get a MUCH more positive post-surgical image, right? I do know this. I spend enough time visualizing a positive outcome….but, in all honesty, I figure it’s going to be a long time before I’m back up to speed again. I do believe it will be okay. I just think it won’t be okay right away and I’ll need to be patient.
In the meantime, I’ll worry about more serious things like when on earth is my hair coming back? I love it. I read a blog post written by a breast cancer survivor who said she thought it would come back like a chia pet…nice and quick. Instead, it comes back one hair at a time…literally. And my eyebrows and eye lashes are almost gone too. And my nails are all breaking. Now THOSE are things to obsess over, right?
So all is good. The tests are done and there was NO BAD NEWS. I am one lucky woman.