What is it about hair? Why would I dread getting my head shaved more than having chemo? And considering the hair I had left, it shouldn’t be a big deal to get rid of it, should it?
For the next six weeks, Mondays are going to be my least favorite day. We were up bright and early and over at MD Anderson for blood work and then chemo. There was time in between so I decided today would be THE day. It was silly to hang onto the last few clumps of thin hair that graced my cute little head. So immediately after I got poked for the millionth time (I’m exaggerating) Jerry and I headed up to the beauty shop to get everything shaved off.
The woman was delightful…We took pictures…before, during and after. The “during” picture was a Mohawk. She said to me, “You probably won’t ever have a chance to do this again. Want to try a Mohawk?” Lots of fun, plenty of silliness, crazy pictures.
“You have such a nice head,” she said. “You look good.”
Bet she says that to all the girls. I mean, she couldn’t say, “Oh my God, what a lumpy head. I’m so sorry.
Anyway, no more hair. Jerry says I look great but that poor guy tells me every day how great I look and believe me I do NOT look great every day.
Went and got my port chemo ready (they stick a needle in) and then downstairs to wait to be called for chemo.. They use a pager system similar to restaurants. Only difference is that when the red lights start going crazy, it does NOT mean come sit and have a glass of wine at a table by the window overlooking the water and enjoy a great meal. It means, Come with me my friend to your little room, hop in bed, pull up your blanket, get out your laptop and get hooked up to the poison of the week.
The pager did not go off for a VERY long time. They were running an hour late at the chemo factory. The 10:30 appt. started at 11:30. Then back to Anne’s and we’ll then back here at 8:30 for Proton. (Yes, that’s 8:30 PM…Trust me I know. I’m not ever awake at 8:30 PM many days. This will be a drag.) I’m bringing my iPod to Proton…not sure if I can use it or not. When I had radiation in 2000 for breast cancer, I used a cassette player, I think…played my church music and visualized light rays melting the main cancer guy trying to kill me…I’ll play my church music again tonight if they’ll let me. Hope so. If not, I might have to sing. They’ll probably let me use my iPod so they don’t have to listen to me sing.
LATER…I wrote the part above while I was getting chemo. Writing the rest at night.
No lie. We got back to Anne’s from chemo and the phone rang. Opening for proton at 5:00…do I want it?
Sure do. 5:00 vs. 8:30…no contest. It did mean getting right back in the car because it was going to be rush hour traffic and might take almost an hour to get there. It didn’t take an hour but there was paperwork and assorted “stuff” for first timers so it was good we were early.
Because we rushed out, I didn’t have my iPod with me. (yes of course I can bring it and use it) But they have Pandora and pipe in the music of your choice during the session. What did I want?
Hmmm..Broadway Show Tunes (I am such an old lady) So as I lay there with my hands over my head I listened to music from Rent and Les Mis and Book of Mormon and some new ones I hadn’t ever heard. Nice. I will go back to my church music because it works for visualizing but it’s nice to know they have tunes.
Proton is fascinating and I’ll write more about it tomorrow. I’ll bring in my iPhone and take a few pictures so you can picture the room. By the way, radiation (Proton) doesn’t hurt. The worst part is probably my arms are stiff after being above my head for twenty minutes.
So now we’re in for the night. The rest of the week is easier. Most days we’ll need to go to MD Anderson for proton…Usually at some weird evening hour, sometimes in the morning. Jerry will have time to get to the Y. If my energy level is as good as today, I’ll have time for yoga and exercise and walking.
Not dizzy any more. I was pretty good yesterday and today I could definitely walk and chew gum at the same time. More energy today than I’ve had in days. No trouble running up and down stairs. Took at nap during chemo and woke up feeling great. Life is good.
Yesterday I saw the movie The Intouchables (thanks, Shirley for the recommendation!) I just loved it. Talk about some people having it really hard. Touching…and funny. I laughed right out loud. And we watched Downton Abbey …What is it about that show that has us hooked? Heaven only knows but we’re hooked. (By the way, we have Netflix…if you have it, send me your recommendations)
Going out to lunch with Jackie (Chris’s wife) tomorrow. She’s terrific…fun, funny and smart. And she doesn’t mind hanging out with sick, old ladies. What more could I want?
Warning. Below are some pretty ugly pictures. If you don’t like looking at ugly pictures, do not (repeat) do not scroll down. If you think ugly is kind of funny, scroll on. The one at the top isn’t ugly. It’s from this morning when we arrived at MD Anderson. I’ve got the beach bag (now my chemo bag) that Sean and Carly gave me. It’s perfect for my blanket, my Kindle and any extra electronic toys I might bring…laptop, iPad, whatever. The three at the bottom are the ugly ones. Enjoy!