Thursday was a beautiful day and a hard day. I was totally wiped out from our trip back to Houston. I just kept lying down every time I had a chance. Couldn’t open mail and boxes, couldn’t unpack, could barely move. Then we went over to MD Anderson and sat for an hour waiting for the proton simulation only to get a call from the tech guy wondering where we were. We were where the schedule told us to be. He had us scheduled for another building entirely, had me down as a no show and wasn’t sure he could fit me in. Evidently he worked some magic and did it so we hopped in the car, went over to the other building and I went through the simulation.
However I was a little worried. This was the traditional radiation center, not proton. So I checked and oops, they had me scheduled for traditional radiation. He promised he’d check on it but I trust no one. Muttering the Serenity Prayer to myself, as soon as we were in the car I started calling. It took several calls but I’m all set. Just goes to show, that even in a place as amazing as MD Anderson, you need to be on the alert.
Proton begins January 6 and ends February 13. That means I’ll most likely be going home around Valentines Day, coming back for restaging , tests and most likely surgery in late March.
Finally got up enough energy to open packages and cards that had been coming while we were in Venice. I can’t begin to describe how NOT alone I feel as I bumble along. My Center School family sent a charm bracelet…one charm from each of my old friends along with notes explaining why they picked a particular charm. I’m getting compliments here at Anderson on it. The lab tech who did my bloodwork earlier today was asking about each charm.
Why the turtles? She asked. Are you slow?
I can be, says I but actually people chose them because I do turtle patrol in Florida.
What’s that? says Felicia.
So Felicia gets a mini lesson on endangered sea turtles and I get my bloodwork done. Fair trade.
Met with Dr. Ho (oncologist) yesterday. Sean likes him. I think he could use a better sense of humor. The guy is way too serious. He’s thrilled that I can swallow again…figures the tumor must be shrinking. Everything else looks good. White blood count was back up so I was good to go for chemo today.
Chemo …First time, Sean, Jerry and I played cards, gabbed and read. Second time I wrote the article for Elin and read. This time…mostly I slept. I finally woke up around lunch time, had some lunch and feel just fine but it is crazy how much sleep I seem to need these days. Great company for Jerry who just reads the paper or his book. Patient guy.
My sister, Eileen,is coming tomorrow. It’ll be a short visit…she’s heading to Katy, just west of Houston, to spend Christmas with Chris and Jackie and her three incredible grandchildren. We’ll be leaving on Christmas Eve morning for Erin’s after my IV line for chemo is disconnected late Monday afternoon. Sean and Carly will arrive Christmas day. The Ginleys will all be together.
Other stuff…I now have two wigs…I’ll have Jerry take pictures one of these days so you can see them. I just hope my granddaughters approve. Poor Declan…Erin told the kids that Nana had lost a lot of her hair because of the medicine she needed to take for her cancer and Declan was worried that when HE took medicine, he might lose his hair.
And I have lots of new makeup…splurged at the Clinique counter at Macy’s the other day. The saleswoman was lovely…and I spent a fortune intending to look good even if I don’t feel good. It’s hard for me to believe people spend this money on makeup on a regular basis. Does it REALLY make that much of a difference???
All’s well in Houston, TX…rainy and warm. Hoping all is well where you are too. Christmas is coming. No more Anderson until Jan. 2! Yay!